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Old Mon Jun 1, 2009, 10:30 AM
Suzanne Suzanne is offline
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Join Date: Mar 2008
Location: Long Island, NY
Posts: 48
My mother took place in this trial. She was on it for approxiamately 5 months. She did get some response in platelets and WBC, nothing too great. It is easy since it is pills and there really wasn't too many side effects. She did get a machine oil type body odor from the pills and nausea on third month. I read another member had the same thing happen.
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Mom 69 diagnosed with MDS RA 3/08
TLK-199 started 7/17/08 - no response
Vidaza started 12/15/08 - no response
Dacogen started 01/10 - no response
Bone Marrow Biopsy 10/10 - 13% blasts
Bone Marrow Biopsy 12/22/10 - 45% blasts - AML
I have an angel 1/4/11
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