|
Special changes that can lead to AML
Dear Birgitta
Firstly I would like to thank you for helping us with such current research information. I have even given some to my husband's haemotologist. I know he attends conferences but I am sure he does nor have many MDS patients.
Am I right in thinking that if you only have a 5q del chromosome change that you are least likely to progress to AML? I know that David's last BMB at the end of the Revlimid treatment showed no other chromosome changes.
Our problem at present is nor getting fresh blood where we live in the countryside. The last two TXs had blood over three weeks old and the cytokines make him feel sick and the time interval is much less. If the next one is as old we will think seriously about travelling the 4 hrs to the city where the haem patients get the freshest blood at our hospital.
Thank you
Helen
__________________
Husband, MDS 5q- 2003. Transfusions,desferal infusions, Revlimid 2007 partial remission. David passed away Nov 2010 with untreatable heart arrythmia probably from iron overload.
|