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Thanks so much to everyone for posting replies. It's good to know that the low hgb is not damaging her organs at this point.
Good news on the doctor front... My mom has (FINALLY) agreed to see another doctor. I contacted the MDS Foundation and they are working to get her in to se an MDS Specialist at University of Chicago. They have been wonderful and are really pushing this through quickly. I'm hoping that we'll get in sometime next week so that they can determine her next treatment. I don't trust that the local guy will choose the most appropriate next step. She has not responded at all to the aranesp after two cycles--actually her counts are much lower than when she started.
Again thanks to everyone. My thoughts are with all of you.
Best,
Amy
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