I hope things turn out OK. Post when you hear something.
I see my hemo on Thursday. She is at the same hospital I tried to get the PET. Hopefully I can go through her and get an appointment. Otherwise, I will go with the CT locally and hope it looks the same. If it doesn't I am going to have to bite the bullet and let them schedule the PET, even if it is totally inconvienient.
Diagnosed MDS-RA 5q- at age 47 (November 2006). Aranesp 2/07, good response.