What is your daughter's current HGB, platelets, and ANC? The number of interest is the one before a transfusion, not after. Has the distance between her transfusions increased at all? Has she shown any improvement in any of her counts?
52 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. Tried slow cyclosporine taper over 4+ years. Platelets fell, so back on cyclosporine. Trisomy 6 clone in 5% of cells.