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Old Thu Sep 22, 2011, 05:21 PM
Hopeful Hopeful is offline
Join Date: Jan 2009
Location: California, USA
Posts: 718
What is your daughter's current HGB, platelets, and ANC? The number of interest is the one before a transfusion, not after. Has the distance between her transfusions increased at all? Has she shown any improvement in any of her counts?
52 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. Tried slow cyclosporine taper over 4+ years. Platelets fell, so back on cyclosporine. Trisomy 6 clone in 5% of cells.
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