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Old Wed Jul 31, 2013, 08:07 AM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,341
Just wanted to acknowledge your post. I know very little about PNH and haven't see much in the way of alternative treatments for it.

Transfused platelets don't last very long even in patients without PNH. Platelets are trickier.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of January 2017, FE is 233, HGB 11.7, WBC 5.1/ANC 4.0, Plts 146K.
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