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Old Fri Aug 2, 2019, 04:19 AM
Meri T. Meri T. is offline
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Join Date: Aug 2016
Location: Tokyo, Japan
Posts: 140
Restless legs syndrome RLS

This past week has seen my feet twitch and jump involuntarily, especially from late afternoon. My arms have started to catch the beat too.
I had a worse version after transplant, and the doctor gave me Rivotril 0.5mg, and my jerking legs subsided. Rivotril makes me drowsy, and I really don't want to take any more medicine if I can help it. Is this GVHD? Or drug related?
Meri
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Female 53, diagnosed MDS RAEB1 in August 2016, watch and wait for 9 months. Sibling match - Stem cell transplant in June 2017. Some GVHD skin.
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