Thread: Alex McGriff
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Old Sun Oct 6, 2019, 09:50 AM
Alex McGriff Alex McGriff is offline
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Join Date: Oct 2019
Location: North Carolina
Posts: 1
Alex McGriff

Hi. I am a 30 year surviving and remissed Aplastic Anemia patient from North Carolina recently diagnosed with PNH. Worked as a successful Engineer since 1994 and currently 48 years old. Currently trying to resume normal worklife.
Just finished my 3rd infusion of Soliris. Ldh has decreased from 1500 to 247, hemoglobin of 12. Clone size 68%. Platelets 170. Anyone with info on the
effectiveness of Soliris and work life with PNH, please reply and please feel free to reach out to me at 862-223-1382. Feedback much needed and Thanks.
Alex
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