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Hi Cupcakegirl,
Just a random thought to add to the mix...
Since your daughter is only 9, do you remember her getting EBV (mono)? I remember getting it in high school and being extremely fatigued for months and months. Can they tell if she is recovering from a recent infection of EBV by the panels?
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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