Biopsy was not conclusive. AGAIN.
Her Doctor Personally called me this evening said her biopsy was NOT normal, but her cellularity numbers are slightly better from last time.... so that part is encouraging. What isn't encouraging is that Hanna has to have another bone marrow biopsy (#3) in a few months and continue to see the specialist if her blood counts stay stupid like this. We still have to schedule the MRI. Waiting on the insurance for that. I need to make an appointment with her Pediatrician to find a different rheumatologist. ....why cant this just be over with? UGH. I have been crying since talking with the doctor about this. I just want my baby well. This is not fair to her!
After talking with my husband, I think we are done with the Biopsies on our sweet girl. We are not letting them do anything further unless there is a severe change in her blood work from now. I am going to talk to her pediatrician and request all the rest of her blood work that I don't have and the MRI and biopsy report when we are done with that this next week. The last year for Hanna and our family has been Hell with all the doctors visits and I just want her to not have to worry. Since the bone pain is not explained other than they know "something is wrong" but they don't now "What" .....I feel lost about how to help her. Her condition is labeled "chronic neutropenia" for now.
Today has been so super emotional....I am exhausted. Thankful for Easter Break..... I just wanted to hear she was all better and that we can stop this madness.
