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Dear Cathleen,
I am so sorry for what your Hanna is going through. It was very difficult to get a firm diagnosis for my husband's MDS. We finally went to The National Insititutes of Health in Bethesda, Md. After 6 months of trying to get a diagnosis, The NIH diagnosed right away. They have a wonderful children's building for families to stay in and are cutting edge in blood disorders. All medical tests/treatments are free to the patient. I understand MD Anderson in Houston is very good also.
I wish your Hanna well.
God Bless,
Sally
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