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Old Fri Aug 16, 2019, 07:01 PM
GoodDay5150 GoodDay5150 is offline
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Join Date: Sep 2014
Location: Centennial, CO
Posts: 150
Hey Sham. You stated that you never had a transplant, but did you ever receive other treatments such as ATG or did your AA go away on its own?
I am not a dr just a patient, so I am not familiar w/ all of the various treatment options and meds used for non-malignant blood diseases in the past. I have heard and met some patients w/ AA and PNH and what they have experienced.
Since diseases such as AA are not very common, I would recommend an appointment w/ a hematologist. You may or may not know that these diseases present themselves in many different ways, so an experts opinion is always the best place to start. You can also look here for more information

https://www.aamds.org/

With that, there are many people here w/ 1st hand experiences w/ these diseases.

Mario
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MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
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