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Old Mon Apr 29, 2013, 08:51 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi Grifmat,

How frequently is your mom getting tranfusions now, or is she able to hold her platelet count above 10k without transfusions?

Make sure that her platelet orders always specify that they are leukocyte depleted and irradiated. It should also say this on the platelet bag (double check). This is believed to decrease sensitization.

Platelets only live 5-7 days, regardless if they are matched. HLA matched platelets can give her a bigger jump, however it doesn't always happen for everybody. There are other tricks that they can try if this is the case. Hopefully they will work for her, and she can hold her own soon!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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