Quote:
Originally Posted by LizR
I'm really confused on chelation. They first checked Bob's ferritin in late May and it was 1225. Since then he has gotten 5 units PBRCs and had 2 desferal infusions of 500 and one of 250. His ferritin is now 1918 and another 500 is scheduled.
Is this normal? Is it possible to need desferal after every PBRC unit? I read the article in the MDS Beacon last week about transfusions and chelation and am now more confused than ever. He can't take Exjade as he is high-risk MDS.
Thanks!
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I have had MDS since 2003. Have received 349 units of PRC. My iron level is off the charts, over 3000. Used to take Exjade, had to stop it upset my stomach. Not showing any reaction to the high iron level, my Doctor is not concerned about it. Every one is different. Don't know if this helps. Don't let it rule you, keep smilling, we can only hope. I'm 81 now, get 2 units every 2 to 3 weeks