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More data, counts from Jan 26.
HGB 94, WBC 1.6, Neut 1.0, Platelets 82, Creatinine 139, ferritin 1282
I have been on 2000 mg exjade a day, so I don't think exjade is affecting my WBC at all. I have given myself today off from taking exjade. Also, my WBC seems to be inching its way upward.
Ferritin right now is nicely under control.
I think the root of my illness is an unidentified infection I had 20 yrs ago. I had a WBC crisis with a 0 count, and was hospitalized for 2 months with a fever of unknown origin (spiking to 106.2F every day). Two courses of G-CSF injections failed, IV abx failed, and the only thing that snapped me out of it was high dose cyclosporine which I had to quit due to liver side effects.
So, in my mind, I think it makes sense that my RBCs won't improve until my WBCs do. Those pesky cytotoxic T cells have to be regulated and calmed down.
I have felt absolutely terrible all week, certain I was getting worse. The treatment I'm on is certainly no walk in the park.
Deb
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