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Birgitta,
Thank you for the kind words.
Tytd,
Don was hypocellular to begin with but that changed to hypercellular before the Promacta so that shouldn't be an issue.
He started Promacta in March, 2011 and had the heart problem in Sept., 2011. According to what the NIH doctors have told us there have been no issues with the heart in previous Promacta trials. (AA trials started before MDS trials.)
This is only a guess but his heart issues could have been a result of all the steroids he received as part of the pre-meds before his many transfusions. He was prone to reactions - especially with his platelet transfusions.
We haven't been told of the results of the other MDS patients in the trial - there are only 3 others. They have had good success with their AA patients with the Promacta not only helping with platelets but with red cells as well. Promacta helped Don with both lines also - in fact one thing I forgot to mention was that last week was the first time since 12/08 that Don's Hgb was in the normal range.
Please let me know if you want any further information and thank you for your kind words as well!
Best wishes,
Sally
Last edited by Sally C : Wed Apr 25, 2012 at 05:02 PM.
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