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Hi Sandy,
You are not alone. My case seems to be a little similar to yours. I also have hypocellular marrow and my platelets and WBC's have been affected most, but I feel my hemoglobin is dropping too because I am becoming increasingly short of breath. I have been to the point of starting pre-transplant testing twice now and then my counts stabilized putting the SCT on hold. In a way I'm glad to have more time, but on the other hand it is frustrating to get to that point and then have to wait. I have another appt at Stanford on Friday and with the new finding of Monosomy 7 in my lastest BMB, I may be headed to transplant very soon. I will continue to follow your blog. Know that you are in my thoughts and that I am in this fight right alongside you. Be stong!
You can follow my journey at carepages.com/jillsjourney2acure.
Jill
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Jill, 58 y/o female dx with MDS-U June 2008, IPSS:Int. 2. Allogeneic SCT May 25, 2010. Relapsed January 2011. Started Vidaza (azacitadine) Feb. 2011; Currently on cycle #58  , IV, 5-days every six weeks. WBC 5.3, Hgb 13.0, PLT 110 (2/16/18)
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