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Hi Baillie,
No, at this time my husband has monthly bloodwork and he's on a "watch and wait". His platelets are the only results low at this time, but he is losing weight. He has only had two biopsies within 2 days of each other (both dry taps) at the very beginning when he was diagnosed and they don't think that having another biopsy is important since he is "doing well".
We are kind of in limbo, like he's driving around on bald tires and the doctors are waiting for one of them to blow. I don't like this at all.
Don't get me wrong, I'm grateful that he says he's healthy and fine, but I am a watchful wife. I know better. He sleeps a LOT, he is alarmingly thin. He only says he's fine because he wants to play hockey starting in July. I'll play his little game, because I know mentally, this is very good for him.
This disease gives me a headache.
Laura
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