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Old Tue Apr 16, 2013, 04:24 PM
4bcsboys 4bcsboys is offline
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Join Date: Jul 2008
Location: Lincoln, DE
Posts: 29
Question How long a wait until a match for MUD?

I was told on March 8 that my AA is now MDS and a transplant is recommened. That day we drew my HLA labs. Less than two weeks later we found out that my only full sibling is not a match.

I know I really have not been waiting long. I really do know that. However . . . since finding out that my sister is not a match--at all--I wonder how long it will really take to find a donor. We are emotionally primed for June, as that is when we planned for IF my sister could donate, but she can't. I was told by the nurse navigator that my preliminary match was very good and she was requesting labs from several potential donors. I'm just starting to get antsy and want to make plans . . .
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Wife and mother of three young boys, diagnosed at age 39 with AA 2007; treated with ATG and cyclosporine; progressed to MDS end of 2012; MUD on June 26, 2013.
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