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I'm sorry about your loss. MDS is such a heartbreaking, variable, and unpredictable disease. It most likely would not have mattered if you had done anything differently. Vidaza turned out to be very beneficial for me. You just never know. Second guessing after the fact is no good.
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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