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Ray,
Thank you for enlightening me on why they have those 1,3, and 5 year timelines. My hematologist stated that half the transplantees passed away within 3 years post transplant due to infection or GVHD complications.
The other half continued on, and 20% more dropped out in the next 2 years.
Lisa,
I use a very soft face and body soap, MUO by Kracie. The hospital prescribes HEPARINOID (HEPARIN) cream lotion and spray 0.3% for itchy skin. Works wonders.
My friend who went through chemo for breast cancer also had raised bumps on her scalp, so I think my bumps are not only GVHD related.
I just love gardening, my only vice. The nurses advised me against it, they even told me to call Gardeners to clear out all my potted plants!! but said if I HAD to do it, then wear gloves, a disposable mask, goggles if I can, a hat, cover myself with long sleeves. After gardening to dispose of mask, wash up, disinfect and change clothes.
Meri
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Female born 1965, diagnosed MDS RAEB1 in August 2016, watch and wait for 9 months. Sibling match - Stem cell transplant in 2017.
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