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Old Mon Dec 11, 2017, 11:05 PM
rar rar is offline
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Join Date: Mar 2014
Location: colorado
Posts: 215
cGVHD treatment

Hi Dan,

Since you have been fighting cGVHD longer than me maybe you can offer some advice. My long standing symptoms include adrenal failure, severe dry eye, skin cancer, dry mouth, dizziness, high and low blood pressure, etc.

I am taking 1 mg. tacrolimus for immunosuppression, 7.5 mg prednisone for adrenal replacement, and 5 mg midodrine to tame wild blood pressure with mixed results.

Any idea of any drugs that would speed up a new immune system or would help with symptoms? Would more immunosuppression knock down the cGVHD? My doctor says that I am a poster child for transplant survivors. I am happy with the results but I am having trouble seeing the light at the end of the tunnel.

Ray
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