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Old Sun Jan 21, 2018, 09:46 PM
rar rar is offline
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Join Date: Mar 2014
Location: colorado
Posts: 215
GVHD

Hi Meri,

I am 3.5 years into GVH. Last Friday I had an oncologist visit. He finally agreed that maybe we have to do something about the GVH. He will be looking into ibrutinib or jakafi.

I have a picture of what head to toe rash looks like. If you are interested I can private mail it to you. Is would be rated pg13.

For itch what I found that works is to run HOT shower water as hot as you can stand over the itchy area. When you stop it is itch free for several hours. I remember getting up a couple times a night to shower. The theory is the itching is caused by histamine receptors firing. The hot water confuses them and the all fire at once and there are none left to itch you. They recover and come back too haunt you.

Ray
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