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Old Mon Jan 22, 2018, 09:44 PM
Meri T. Meri T. is offline
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Join Date: Aug 2016
Location: Tokyo, Japan
Posts: 174
GVHD skin itch

Ray,

Yes, please private message the GVHD skin rash into my private mail, I believe it would be worth it.

I am also in the habit of taking shots of my rashes, raised spots, red spots in places where it's hard to see. I show the shots to my Doctor at every appoinment. For face, hands and even the back, he can see for himself.

The nurses have advised me against taking HOT showers, advised against using sponges too. It would only dry and scrape the skin more. Then apply lotion within 5 minutes after shower.

Tokyo had snow yesterday(!?), and today the sun came up, the glare hurt my eyes, so I think I need to be more diligent on those eyedrops. How are your eyes? Hope you get better with Irubnid (SP)

Lisa, hope your gastritis is in a good place now. My Spring break starts March 21, which if I am not wrong, is your 2nd rebirthday!?

Keep warm and flu-free everyone,
Meri
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Female born 1965, diagnosed MDS RAEB1 in August 2016, watch and wait for 9 months. Sibling match - Stem cell transplant in 2017.
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