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Lee,
I don't understand why your doc feels you need to wait. That seems very odd to me....If you need red cells you need to get them. I can't think of any reason to hold off until you start Exjade. There's way more risk of having low red cell than the current iron overload. What is your ferritin level and how long has it been high?
Your doc also has the option to order IV desferral to be given during a transfusion if he's really worried about the iron. IV or Sub-Q Desferral is is what many used prior to oral Exjade was available.
I would push to get red cells if you are having symptoms.
Marlene
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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