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Old Sun Aug 2, 2009, 06:06 AM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Desferal

Hi Margie,
You know Desferal (deferoxamine from Novartis) has been used about 40 years for iron overload all over the world. If your doctor isn’t used to work with Desferal you could consider changing doctor.

In Sweden Desferal is given for 4 days with transfusion with a small home pump (looks like a lemon) through a port-a-cath, that has to be inplanted in the upper part of your chest.

I have had no problems with transfusions or Desferal since I got my port-a-cath (Jan 2007) 8 months after dx. Desferal has not given me any adverse reactions.

Here is a link about iron overload including Desferal
http://www.desferal.com/index.jsp

Cindy has already told you the you can get fever from having a cancer disease like MDS – it is some of the so called cytokines that can cause fever.
Kind regards
Birgitta-A
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