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At long last. It looks like I may be able to finish my daily visits and my IV antibiotics at home. My ankle has lost most of its' redness and heat, my fever is gone and it's a lot less painful.
I have been going to day care everyday but haven't seen my doctor since Saturday when he added in a third antibiotic because my ankle wasn't getting any better.
I have an appointment to see him tomorrow and I'm very hopeful that I can have the CADD pump taken off.
Unfortunately, my ankle and foot are still very swollen and this has not improved at all. I was thinking of buying a compression stocking. I will ask my doctor if this is okay but I can't see why it would be a problem.
Wish me luck. I feel like I've been hooked to this machine for a long long time.
Chirley
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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