[susansr]

Dear Gloria: thanks for the info; I was rather surprised that it took up to 18 months to feel better.
Did you need a 2nd ATG treatment? My doc was saying we evaluate things after 4-6months; sounds like things are very much under control now for you;. not needing transfusions very often, yeah!

I am just starting to wean off prednisone; it gives me the tremors, big time, and of course has distorted my face shape (touch of the chipmunk look); instead of cyclosporine, my doc has me on tacrolimus.

I appreciate your words of encouragement. what's life like now for you?
can ya actually forget you have this disease?