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Karen -
Hi - I wonder what the difference is between getting the IV 5 days off 21 and the injections? I get the IV. It is so much better than the dacogen. I get tired, no appetite problems to speak of - but the constipation is really bad. I use softener everyday, and get mouth sores. I am taking a medicine for the sores but not working this month. Still I am sure grateful, I get another BMB in a month to see if it works. Keeping fingers crossed. Have a blessed day.
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Susan Patient, 58, MDS, UPDATED 9/13
Now have RAEB-2, Firbrosis 3+, blasts 18% peripheral, 10 - 14% blasts marrow, chromosomes now T 1:21, trisonomy 16 and 1.- Match found ---10/10 -couldn't believe when I heard - Tentative day is 1/09th!!!! Admit date changed to 11/12. WOW -
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