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Old Thu Feb 9, 2023, 03:47 PM
Matthew42 Matthew42 is offline
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Join Date: Jul 2021
Location: USA
Posts: 130
It's been 21 months since ATG for my mother. She's had a big improvement in her neutrophil line. They are now hovering between 1100-1500. Her total white count is averaging close to 3.0. Also, her platelets are holding at 10,000 after a week after a transfusion (never happened before). So, her doctor said that my mother is making 10000 platelets on her own. And, finally, her blood is only dropping by less than a point in a 7-day period.

We were going to do Campath, but because of the big improvement in neutrophils in the past month, we're going to delay things for 3-4 months. We are baffled why things have improved. Could the ATG be kicking at 21 months? It's all very bizarre. She's been off cyclosporine and Promacta for 6 months (doctor said they were not working).

We were told that once neutrophils reach 1000-1500 and stay up, they don't consider that line an issue anymore. It was also mentioned that the other two lines should start to show some improvement if the neutrophils improve that much (close to normal).
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