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Hi 5qminus
The man on Revlimid for 48 months(in Aug 07) was from Pittsburg; unfortunately, I don't have his name. He was not -5q, the same as myself, but both of us have responded well.
My insurance thru my former employer pays for the drug, some will not pay if one isn't -5q but others will.
A friend here in Cincinnati has had to change to Medicare part D as a result of his company dropping drug coverage for retirees. He said that Revlimid will be covered but at a fairly high cost. I think part D will pay 95% after one pays the first deductibles and works thru the "donut whole". At 5% my Revlimid would cost over $350/month.
Do you have insurance or are you on medicare?
I believe that the Doctor or cancer clinic can petition your insurance for coverage that might normally not be covered. It may take a few tries to make it work.
Hope this helps a little.
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Kirby71, RAEB2 dx 2/04, Thalidomide 30 mo, Revlimid 18 mo, No resp Vidaza
6/09 2nd Thalid use, Promacta, Lowdose Dacogen added 10/09 at 40% blasts. 5/11 BMB-blasts 8%.
2/11 2nd Revl restart=good resp, Platelets drop 6/11, 3rd Thalid,+Nplate+Dacogen. 7/12 Cnts stable for 10 mo.
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