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Even though John had iron overload, it was only up to 4600. I don't know about the spots. If they are bruises, we found warm moist heat would help clear them up faster. Do they go away eventually?
Are they going to start you on desferral? If they don't know what to do, then they should consult with another doc with experience or refer you out someone who does.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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