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Old Fri Oct 5, 2012, 02:57 PM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
MDS

Hi teo,
I admire you for trying to understand as much as possible about MDS in a very short time. Remember that many of us have been reading about these complicated diseases during many years.

As many members already told you it is very important to examine if your mother has MDS or some other disease. A very common cause for low HGB is vitamin B12 defiency - I am sure that her doctor has examined that vitamin.

At pages 6-7 in these guidelines you can read about what tests should be done http://www.nmds.org/Nordic-Care-Programme

The BMBs from your mother have not been OK - she must have one more under sedation. It is very important to have a diagnosis before any kind of treatment.
Kind regards
Birgitta-A
Started treatment with Thalidomide + Prednisone June 2010. In Sept 2010 I received the latest transfusion. Now my counts are slowly decreasing.
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