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I also am from UK. I found the top MDS specialist in the country, in the top hospital and asked for a referral for my husband.
It isnt close for us, so we did a lot of travelling. I have rented a flat as he has just had the transplant, and we will stay close by for 3-4 months.
My logic was to just go to the top, and even if it will cost more in time and money, you will never be able to say 'I wish we had gone there'.
Starz
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