I have 5q- and I have been having upper right quadrant pain. I thought it was a kidney stone. There is a very small stone lodged in my right kidney, but they say that isn't the problem. I had a CT Scan, revealed nothing that might cause pain, though they found a nodule in my right lower lung. I go for a repeat scan next month. My pain comes and goes, has been extreme, but mostly a dull ache that is not constant so I haven't needed pain pills or anything. At this point, unless it becomes more severe, I am ignoring it. I am beginning to think it is just part of aging for me. Let us know what you find out.
Zoe
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Diagnosed MDS-RA 5q- at age 47 (November 2006). Aranesp 2/07, good response.
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