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Old Wed May 16, 2018, 01:47 PM
GoodDay5150 GoodDay5150 is offline
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Join Date: Sep 2014
Location: Centennial, CO
Posts: 150
Hi Rarity. We wish your and your husband success. If you search my posts, I have written abt my experience w/ GVHD and the entire transplant process. My GVHD was most pronounced for a few years following my transplant and seems to be (hopefully) SLOWLY going away. Most recently, abt 5-6 months ago, I had 4 Rituxan infusions, which have helped. I did photopheresis, steroids, nilotinib, and probably something else I am forgetting. I am on volume 2 of my paper medical file at my transplant dr's office. A lot of appointments! I was told that my office was going to begin Rituxan injections which take a lot less time than an infusion, so that will be beneficial to those w/ GVHD. With that, some transplant patients experience very little GVHD, so hopefully your husband falls into that category. Please keep us updated.

Mario
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MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
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