Thread: patients in CT
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Old Mon Nov 24, 2008, 04:02 PM
Maddie C Maddie C is offline
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Join Date: Apr 2007
Location: Shelton, CT.
Posts: 8
Thanks

Thanks Beth for getting back to me, this is such a lonely disease I sometimes feel very lost. I live in Shelton Ct. The Docs have taken a wait and see approach with me, I have been to Yale and to Sloan Kettering both came up with the same DX raeb 1 they said from every indication I look like a candidate for a transplant but beacause my counts are pretty stable they think it best to wait. My platelets are 318 and have actually been going up. I was DX almost 2 years ago and have had no treatment at all, I feel blessed because I feel like at least it buys time. I have Thalacemia minor an anemia that runs in the family so I am use too feeling fatigued sometimes. Where are you being treated? and how are you doing? Lets stay in touch.
Thanks Maddie
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