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It's perfectly natural to be afraid when you know something is wrong but you don't know the cause. Back pain can be especially frustrating because there are many possible causes and the doctors may need you to take a lot of tests to diagnose it. If you didn't have back pain before your transplant, then I think it's reasonable to assume the pain you have now could be transplant related, maybe another symptom of GVHD.
Pain can be harder to diagnose than more visible symptoms like the skin rash you had from GVHD. Each type of test (X-ray, CT scan, bone scan, etc.) gives the doctors a different kind of information. Some tests identify the structure/size/position of bones and organs, but a PET scan can identify biological activity to see "what's going on." The PET scan should be an easy procedure and the results should be back in a matter of days.
If they've narrowed the problem to the pelvic area where the sacrum and ilium are, I see that as progress towards a diagnosis that will let you and your doctor determine the appropriate treatment.
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