|
Juliet, I agree it sounds as though your daughter is doing well. As Norma said, platelets are not always the last line to respond, but it seems they are often very slow to bounce back. What you have to remember is that AA is not a single homogeneous disease, but rather a group of syndromes that share a similar set of symptoms. So one person's pattern of response my differ from another's.
Ken's Plts never rose above the high 20s his first time around. He relapsed when the cyclosporine was tapered, and had his second ATG a year and a half after the first. He showed a better response the second time around, but still slow. Here are his Plt counts at annual intervals, starting with 1 year after ATG.
1 yr: 56
2 yrs: 73
3 yrs: 113
4 yrs: 117
5 yrs: 127
6 yrs: 140
So basically for him it took 6 years to reach normal range. We relaxed a little once it hit 50, and when he got to 100 it was cause for celebration! He's been on a maintenance dose of cyclo all this time to avoid another relapse. His WBCs are still on the low side, however, so your daughter is doing better in that respect.
Hope this helps.
__________________
-Lisa, husband Ken age 60 dx SAA 7/04, dx hypo MDS 1/06 w/finding of trisomy 8; 2 ATGs, partial remission, still using cyclosporine
|