|
Hi Bencey.
I'm also in London. Which hospital are you being seen at, and importantly, has your haematologist consulted with Prof Mufti at Kings yet? He is THE leading MDS specialist in the UK, and one of the top in the world. Aside from that, he's a wonderful, warm, funny, and caring man, too. At the very least, your tests, BMB results, and blood result trends should be sent to him for analysis, but if possible, I'd push to get seen by him personally.
melissa
__________________
36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding!  I've run 5 marathons now!! (PB 3:30!)
|