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I was weaned off of prednisone sometime ago and was having similar symptoms - fatigue, weakness, some muscle pain, and we tested for adrenal insufficiency. I am now taking hydrocortisone and may begin weaning off of that to see if my adrenal glands have begun producing cortisol again. It is an easy test, but takes over an hour as they have to measure cortisol levels three different times over an hour time period to see how your body is processing it.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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