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I am not a medical doctor, just a 10 + yr patient w/ PNH pre and post allo transplant. I know that sometimes AA can go into remission and then return as PNH years later. (Remission after being treated w/ ATG.) I am not aware of the exact statistics, but I have met a few people who have experienced those results. I have met a few different doctors who have had differing opinions than those of my transplant team, so you may get different answers from different dr's. There are many excellent resources avail online including NORD, as well as some others. We all wish you well in your treatment plan.
Mario
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MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
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