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Old Sat Aug 1, 2009, 09:39 AM
knstone knstone is offline
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Join Date: Aug 2006
Location: Cincinnati, OH
Posts: 118
Promacta

I was able to obtain Promacta thru an arrangement with PromactaCare.com.
A multi page form is filled out by the patient and the doctor, it is somewhat like a mini-drug trial. The doctor is required to FAX some info on the patients response at 6 months, blood tests for liver functions are required. GlaxoSmithKline has made this available which is very nice, Nplate by Amgen cannot be obtained for MDS patients. Promacta is a capsule that is taken daily making it convenient.

I had to purchase the drug which is quite expensive, Medicare part D is my drug plan so I ran thru the "donut hole" of approx $4500 with the first Promacta and thalidomide prescription.

The results are not conclusive at the moment, some indication that it is helping. I've seen no side effects from the Promacta which is taken at night.
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Kirby71, RAEB2 dx 2/04, Thalidomide 30 mo, Revlimid 18 mo, No resp Vidaza
6/09 2nd Thalid use, Promacta, Lowdose Dacogen added 10/09 at 40% blasts. 5/11 BMB-blasts 8%.
2/11 2nd Revl restart=good resp, Platelets drop 6/11, 3rd Thalid,+Nplate+Dacogen. 7/12 Cnts stable for 10 mo.
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