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Old Sat Oct 1, 2016, 05:51 PM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
I think your post is OK here. All of these diseases are bone marrow failure of some sort and will be read by others no matter what their disease is classified as. These bone marrow failures all share some common issues. Having a good title for your post was helpful. But going forward, you may have other questions specific to just the MDS or just iron overload, etc., and an other category may be a better fit.

Even though the Exjade will not reduce the iron as long as he's getting transfusions, it will help keep it from increasing to very high level. I only knew of one person who was able to bring down his iron while still getting transfusion but he was on a very aggressive chelation schedule. He did IV desferral 24/7 and was able to keep ahead of the iron from transfusions.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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