[Heather8773]

Neil

Thank you for the advise! I asked his hematologist if he had AA and he said no, but that before the bone marrow biopsy results came in that was something he was looking to rule out/ or dx. His WBC after 2nd treatment was 2.8 (awaiting newest results)

Thank you for the name of a specialist! And for asking about his treatments. He seems to feel better the days closest to his treatment. This is the first time he went to bi weekly and I'm wondering if it was better weekly because I could really see how weak he was getting 2 days before. As for side effects he's doing pretty well a really runny nose first day of treatment only, and a head ache (not to bad considering other side effects possible) right before the third treatment his blood was taken and his LDH had come down just over 200 pts! Very happy to see after only 2 treatments!

Thank you I will ask about the medicine you informed me of. We are hoping that the hemolysis is what have been affecting the platelets. With the LDH coming down we hope that platelets will get more normal (although we know Solaris is not to treat that).

I'm so happy that we can feel less alone because of sites like this!