Scott and Donna thank you both so much!
Scott thank you I am looking forward to that too! Waiting is hard but it is all we can do 
Donna thank you for sharing your experience! It is nice to hear that directly from someone who is treated by Dr. Rice. I know he has a great reputation but im happy to hear a first hand account!
Excited to meet with an expert and nervous bc in a way it feels like starting over.
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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