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Hypoplastic MDS
My husband was dx w/ a mixture of AA/MDS in 2005, was evaluated for a bone marrow transplant in Feb 2006, but the doctor decided to try cyclosporin to hold him over until transplant. Well - it worked like a charm. He has been transfusion independent for 3 years. He never did the ATG. Since January of this year his counts started dropping and currently has platelets of around 28, Hct 32 and WBC normal. We are leaving for Bethesda, MD and the NIH this Saturday so he can be evaluated for a clinical trial of a campath infusion. There is no printed outcomes of this trial, but our doctor is saying it has had a 75% response. He is just be evaluated, not sure he will want to do it, but there are no other treatments at this time just MDS drugs/transplant). His cyclosporin has just become ineffective (they did try and adjust this). THe trial is #NCT00217584. He was 59 when he was diagnosis and just turned 63. He has been living well the last 3 years without any symptoms.
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My husband, Moe, was dx w/ bone marrow failure 8/05, w/ MDS 12/05, been evaluated for BMT 2/06 & match found. Currently taking cyclosporin and counts are virtually normal. BMT on hold.
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