Greg
I haven't visited the forum in quite a while. While I am doing well, I guess I like to stay away from it, but I was wondering how you were doing since I last read that Campath was not successful for you.
Yes, NIH sure does take their research samples, but VERY positive that they called you to consider the telemere trial. I would go for it, if it was me.
My last bmb down there was extremely painful; I hope the next doc is better at it!
I wish you great luck and keep us posted if you end up doing it. So disappointed that Dr. Olnes has moved on, but I am looking forward to meeting Dr. Scheinberg on my visit in March for my 3 yr follow up.
I will keep you in my thoughts and prayers! Keep fighting!
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Dx. 6/08 with AA, then changed shortly thereafter to MDS. Campath trial at NIH March '09 and have been transfussion independent since June '09
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