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Originally Posted by LCarrington
Is this the correct forum to discuss LGLL? I have been in one Facebook group but one of the admins has a personal vendetta against me. Looking for a friendlier place for support with this baffling, scary, and largely unknown variety of leukemia. Thank you. Lewis
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Welcome, LCarrington.
You're welcome to discuss LGLL with anyone here at Marrowforums. Users here can choose to be anonymous if they want, and you won't find any vendettas, just discussions about diagnosis, treatment, and living with these diseases.
Whether you are facing T-cell or NK-cell LGLL, you might also look for information from the
Leukemia & Lymphoma Society. In addition to medical information, they offer local support groups all over the country.
The
Colorado Springs Family Support Group meets monthly on the third Tuesday of each month, at 6pm Mountain Time, so the next meeting will be on January 18, 2022. The people who participate there may be facing many different forms of leukemia, so there may or may not be a discussion involving LGLL. The Leukemia & Lymphoma Society may be able to tell you about any LGLL-specific resources they have.