Thread: T-Cell LGL Leukemia: Trying to connect with others
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Old Mon Dec 27, 2021, 10:47 AM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
Quote:
Originally Posted by LCarrington View Post
Is this the correct forum to discuss LGLL? I have been in one Facebook group but one of the admins has a personal vendetta against me. Looking for a friendlier place for support with this baffling, scary, and largely unknown variety of leukemia. Thank you. Lewis
I am familiar with a LGLL FB group and with the admins. I know that one lady is just very careful as to who she lets in because they have been burned in the past. I'm sure they have questions to answer to join. Do you know why she has a vendetta?
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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